Wednesday, April 26, 2017


I have been reading a new book Work Simply by Carson Tate.  It is a book that tries to show you your type of productivity style and how you can work more efficiently.  I thought I would try some of the suggestions.  I am constantly inundated with emails, paperwork, and tasks that never seem to get completed. 

One of the suggestions is to have a 15 minute list.  Things you can do in 15 minutes.  When you are waiting for your friend to arrive or when you are on hold with your insurance company.  There is a list waiting that has things for you to do instead of websurfing or looking at facebook. 

One premise of the book is that we all have a running list of things we need to do that we keep in our head.  Sometimes we put some of it down on a piece of paper or into our phone.   One of the first thing you do is a brain dump.  You think of all the items you need to do. All those to dos that you have in your head: change the light bulb in the garage, call and make an appointment and finish the project for the client.  Clear your head and then you make a Master Task List.  I made my list today and my head feels empty!  There is more to it than that and I will let you know if it ends up being useful.

I have not figured out what type of productivity style I have yet.  I am not good at assessing myself.

Until tomorrow...

Tuesday, April 25, 2017


I had my first heart episode and it took my so off guard that I forgot to push the button.  It is hard to remember to push a button and where is the button and how long do you push it when it happens.  I have been practicing without actually pushing it so I am prepared.  The episodes happen quickly and only go for a few seconds.  I have to move fast.

To make myself feel better last night I baked my nephew some vegan brownies and mailed them to him this morning.  He will get them tomorrow just in time for his first final at college.  I figure some good homemade brain food will be good for him and his friends.  He loved these brownies when I made them for him last time.  Hopefully they make it there okay.  I wrapped them a couple of times. 

The lady at the post office said it was super that I was sending my nephew brownies for finals.  She said I was a good aunt.  I don't know. I would have been a good aunt if I had done it during the school year more often.

Until tomorrow...

Monday, April 24, 2017


Did you ever get so angry you just can't talk about it?  That is where I am. 

Today was a medical day.  First I went to the cardiology department and had my heart monitor put on.  It is about the size of a cellphone but about two cellphones thick.  It clicks onto your belt.  There are wires that attach to the four stickers on our chest under your shirt.  It is super sexy, not!  I have to wear it for 30 days.  When I have a heart thing happen, I am supposed to push a button and enter the information about what I am doing.  When I am showering, I detach the cords.  Every three days I change the pads.  So far no episodes.

Then after a short break at the hospital lobby watching TV on my phone, I went to see my RA doctor.  This is my new doctor for the last year since my long term beloved RA doctor retired.  My new RA entered the room and stayed for about 4 minutes asking me how I am doing while sitting across the room.  She then left to review my chart for 5 minutes.  She returned to look at some of my joints and ask me where I am hurting.  I told her my hips, elbow, shoulder, and I am pain and can't sleep.  She asked me if I hurt along the back of my lower legs.  I said I have.  She left the room again for 5 min.  When she came back, she told me I do not have rheumatoid arthritis but I have Ankylosing Spondylitis/Spondyloarthritis.  She said I have four choices for medications: Ibuprofen, prednisone, methotrexate, or enbrel.

If you have been following this story for a long time, you may remember that I took methotrexate a long time ago and got methotrexate lung.  A serious disease that effects your breathing. Ibuprofen effects my stomach.  It took me years to decrease the prednisone that I refuse to increase my dosage unless it is an emergency.  And Enbrel!!  Last year I got meningitis and was told not ever take Enbrel again.  Now she wants me to take Enbrel again.  Horrible options.  She had no other ideas.  So two options that almost killed me and two options that will not do much.  Well, thanks.

Not to mention that after all of 7 minutes of talking to me, she changes my diagnosis from RA to Ankylosing Spondylitis/Spondyloarthritis (AS).  The main complaint of people with AS is a loss of flexibility of the back and neck from inflammation.  Pain, stiffness, limited mobility in the lower back.  Pain in the knees and heels.  The person has a hunchback posture.  Okay, I slouch but I have always slouched.  I just have bad posture because I am lazy.

The reason I had shoulder pain right now is because I have rotator cuff problems.  It has nothing to do with AS.  This doctor is a wacko. 

I have called and made an appointment with a new doctor.  I need a new perspective.  I gave this doctor a chance. She may be a brilliant researcher but she is an awful person doctor. 

Now you can see why I am so upset. 

Until tomorrow...

Sunday, April 23, 2017


An ice cream shop opened in my neighborhood.  I am super excited because it has vegan ice cream flavors. I went down today to try it out.  It had some coconut butter pecan ice cream and guava sorbet.  They let me try both flavors and the guava sorbet was delicious.  I got the pecan ice cream because I wanted some ice cream.  It was really creamy.  I ate it really fast.  It is really dangerous having delicious ice cream that close to my home.

I made a really good salad tonight.  It was a Quinoa, corn, edamame salad.  It is colorful and delicious.

Until tomorrow...

Saturday, April 22, 2017


I am finally getting around to watching When We Rise.  It is the historical mini-series about gay and lesbian history that ABC put on TV back in March.  I recorded it and I watched it this weekend.  A four night event goes faster if you don't have to watch all the commercials.  It is so funny to see your things that you participated in documented in a historical mini-series.  It is a sign you are old!

The series was well done.  Anyone who doesn't know much about gay/lesbian history should watch it.

Until tomorrow...

Friday, April 21, 2017


Lucky made me proud today.  When I adopted her she was protective over everything.  Her food, herself, her bed.  If she found something to eat on the floor, she would attack someone who tried to take it away from her or even came near it.  She thought everyone or everything was trying to take her food away. She would even attack if you blocked her from getting "food" if she wanted it.   Once she got in a fight with Happi over a bug.  See where I am coming from?

Today we were on a walk and Lucky found a pit.  It was a cherry pit or some kind of pit.  I was trying to get her to leave it alone but she was intent on chewing it.  I had a dog treat and I told her to drop it, leave it.  I offered her the dog treat and guess what?  She dropped the pit and sat down to get the dog treat!  Then she was calm when I reached over and took the pit away!    A few years ago if I had done that I would have lost a finger.  She was so nonchalant about the whole thing.  I was so proud of her.  I gave her more treats and told her she was a good pup.

When your children make you proud!

The gardener came and power washed the slate in the backyard.  She got the green moss and dirt off but there is this black stuff that would not come off.  It looks pretty good.

Until tomorrow...

Thursday, April 20, 2017


I picked up my glasses today.  My glasses are progressives and this is the first time I am wearing progressives.  People have been warning me for years that they are horrible and that I am going to hate them.

I got my new glasses and went to a coffee shop and put them on and began to read.  I have no idea what people are talking about.  I walked up three flight of stairs with no problem.  I thought they were great.  I did not wear them home on public transportation.  I thought I should get used to them first before I went on the subway.

I am going to spend the weekend wearing them before I have to drive and get around.

Until tomorrow...

Wednesday, April 19, 2017


I went to see my primary care doctor today.  It was a follow up from when I went to the emergency room with the heart palpitations and from when I saw him with the tendon pain in my legs.

I had a long list of things that are bothering me.  He wanted to hear the list when I got there.  I told him that my elbow still hurts, my shoulder hurts, my hands hurt, my chest is tight and it is hard to breathe sometimes, I can't sleep from the pain.  He immediately said he is worried that my RA is going crazy and he wants me to get on some more aggressive medication.  I am happy about this because since I have been off the Enbrel, I have felt that my RA has gotten worse.  The Enbrel stopped the progression, that is what it does.  I have not taken Enbrel for one year and for the last 6 months I have been getting progressively worse.  Today I told my doctor that I feel like I am falling apart.  So many parts of my body are in pain, I just feel old and like I am falling apart.  The hardest part is that I am out of breath going up a flight of stairs which means I could get interstitial lung disease.  This can turn bad.  I could also have costochondritis (inflammation of the chest and rib cage) although it doesn't feel like it.

I also have a weird rash on my legs and a spot that I need to get checked by a dermatologist.

I am just a mess.  The doctor said I need to make an appointment with the RA doctor immediately.  I went to get blood tests done this afternoon.  I am also getting a heart monitor to wear for a week or two to see how my heart is doing after the emergency room visit.

I am sure everything will be okay.  I believe in being proactive and checking things before they become a big problem.  Maybe getting on a new medication will make me feel better and not so tired all the time.  Next week will give me answers.

Until tomorrow...

Tuesday, April 18, 2017


I hosted some neighbors for dessert at my home tonight.  I found a dairy-free, vegan chocolate cheese cake.  It was really good.

It was fun catching up with some friends and having tea and cake.  I need to do it more often.

Until tomorrow...

Monday, April 17, 2017


I am anxious for sunny days to begin.  It has been raining for so long.  We have gotten a few sunny days here and there but then it rains for a few days or a week.  It is hard to have so much rain.  I could never live in a rainforest.  Being damp and wet all the time is so depressing.  I need the sun!  That is why I moved to the left coast.  It is supposed to the be the sunny coast.

I am waiting for sunny days.

Until tomorrow...