A blog about my life with rheumatoid arthritis and all that goes along with it. The ups and downs. The highs and lows. The laughter and the tears. Sounds so dramatic, doesn't it?!
Tuesday, July 23, 2024
MAMMOGRAM DAY
Monday, July 22, 2024
BREAST MRI
I went to my breast MRI this morning. It is such an uncomfortable test. You undress, lay face down on the MRI bed with your face in a circle. Your breasts are put in a metal guard where your breasts are sticking through downward. They stick you feet first into the MRI machine. Half way through, they put some contrast in your arm. Fun it was not. I did wear my tiara!!
Until tomorrow....
Sunday, July 21, 2024
GEARING UP
Wednesday, July 10, 2024
BREAST EXAM
I went to my annual (or multi-year in my case) breast cancer check up. The doctor examined me and gave me a slip for both a MRI and mammogram. I missed last year so I need to get the tests soon. I wore my tiara as usual, no matter the weird looks I get. That tiara has power to keep me breast cancer free! It was given to me by a close friend.
Until tomorrow...
Friday, July 21, 2023
ANNUAL MAMMOGRAM
Quite a busy day. The contractors showed up for what I hoped would be the final day. It was not but more of that later. When they showed up I was just out of the shower.
I had to leave a bit later to go to my mammogram. First, I had to put on my tiara. When I got there, the receptionist referred to me as Princess. The tech who did my mammogram had no sense of humor. I find having a sense of humor helps when getting a mammogram. The results will be available in two weeks.
Next I went to acupuncture. I really needed it today. I have pain in my foot, pain in my shoulder and pain in my back. Plus, I am currently having a flare.
I got home and the contractors put together most of my deck. The aim was to finish it today but that did not happen. They say they will finish it tomorrow. Turns out putting the deck back together was more of a challenge than they thought. Fingers crossed for tomorrow.
Until tomorrow…
Thursday, December 22, 2022
BREAST MRI RESULTS
Wednesday, December 21, 2022
BREAST MRI TODAY
Today was my breast MRI. I do not have problems with MRIs since I have been having MRIs since I was 19 or 20 years old when I hurt my back. Beck them it was the old MRI machines where the circle you went into was really little. I learned to zen out when I was in there. Never open your eyes and just try to go to sleep or a deep relaxed state. The MRI today had music so I was able to listen to rock music (my choice.) The only thing I forgot was I hate when they say "3 more minutes", "now it is going to be 2.5 minutes". I would rather they just let it run until it is over. Their talking brings me out of my zen.
I will have the results in a few days or more since it is Christmas. You may be asking if I wore my special Tiara and yes, I did. Of course I got weird looks since the MRI department was moved during lock down to a larger building. I don't care. That Tiara has magical powers and was given to me by a friend who helped me years ago when I had my first breast cancer scare.
Until tomorrow...
Monday, December 19, 2022
BREAST CANCER CHECK
Wednesday, July 20, 2022
DAY TWO HUNDRED TWENTY-SIX OF COOKING COURSE
The chair is together and it looks great. It reclines, heats and massages. The guy showed up early to put it together. I think he was a taskrabbit kind of person because he was reading the directions. He wasn't like a tech who puts these chairs together for a living.
I have been sitting in it all day. It is really comfy.
My landscaper came today for his final day for a couple of weeks. He dug out an ivy root that weighs about 70 pounds. It has probably been growing for at least 30-40 years. It had grown into the back fence and he had to cut a piece out of the fence to remove the root. I have a large rock that covers it nicely.
Next comes the fencing people. I am happy to have some peace and quiet for a few days. I need to get some work done. It is hard to work and try to project manage all this stuff.
Vegan Chickun Burritos made with Seitan.
The seitan is in the wrapped packages where it is steaming. Then once it is done, it gets broken up and fried. Seitan is essentially a dough made with vital wheat gluten, a high-protein wheat flour, and liquid. Here I used it to make chickun to put on the burritos.
Update: I got my mammogram results and the Power of the Tiara worked again. My mammogram is clear. For those of you who don't know, I had a scary mammogram years ago and a dear friend bought me a tiara to keep me safe. I wear it to all my breast screenings. The Power of the Tiara we call it. That tiara keeps me safe and the women at the breast health center who have worked there a long time know me when they see me because of it.
Until tomorrow.
Friday, July 15, 2022
I'M GOING TO HAVE TO FIRE THE LANDSCAPER
Monday, April 6, 2020
REAL BRCA RESULTS
Another pouring rainy day. Lucky went with the dog walker but only for a short time. The rain started to come down and he brought her back home. I wish I had taken a photo of Lucky wrapped in a towel, soaking wet looking so little. She was smiling but not so happy she was so wet. She wanted (in typical dog fashion) to jump up on the couch and the bed. I had corral her and keep her on her own bed covered with a towel.
I got the report from the doctor from my BRCA test. Now I have the actual results and not my horrible memory.
- I have an elevated hereditary cancer result.
- I tested negative for any clinically significant mutations in the genes on the hereditary cancer panel. My risk for hereditary cancer syndrome is lower but not ruled out. I am still at an elevated risk of cancer based on my breast cancer score or my clinical history analysis.
- My Breast Cancer score for my remaining lifetime is a 32.2%. Anything over a 20% is to be considered for modified medical management. I am in the above average risk category. The general population is a 10.3%.
- Based on my History Analysis modified medical management is identified.
- My 5 year risk for breast cancer is a 4.9%.
Until tomorrow...
Thursday, April 2, 2020
DNA TEST RESULTS
The I had a tele-doctor appointment with my Ob-Gyn. Months ago I had a BRCA test done. If you remember I could not do the spitting in the tube because I do not have enough spit. They had to do a blood test instead. Today I got the results. They were what I have always said it would be; that I am high risk. But it was really scary to hear it as actual results from a test. I don't have the actual numbers, they are being sent to me. I can only write what I remember.
The test provides women with their remaining lifetime and 5-year risk for developing breast cancer. It confirmed that I am high risk for breast cancer. It is no longer speculative. It is confirmed. The threshold is 20 on the lifetime test. I am either a 32 or 36. That means I have a 32% or 36% remaining lifetime risk for having breast cancer.
Then there is a 5-year risk for breast cancer. I have a 4% 5-year risk for breast cancer. That is considered high-risk.
Then my friend M came to visit. It was a distance visit approved by my doctor. My friend stood on the sidewalk at the bottom of my stairs and I sat on the top stair with a mask on. We visited for an hour. We talked about current events, work, movies, and, of course, coronavirus. We made a date to watch a movie together with Netflix Party.
I had a new client sign a contract for work and another client sign a contract for more work.
In all it was a pretty interesting day.
Until tomorrow...
Thursday, January 30, 2020
BACK PAIN DAY #7
Then I went to see my therapist for the last time with insurance. My insurance from The-insurance-company-who-will-not-be-named has decided they will not pay for my therapy anymore. I guess having RA, a foster child I don't have in my home and the regular stresses of every day life are not enough going on for therapy.
I stopped by my primary doctor to see about the outstanding bill from 2018 that has gone to collections to see if that has been resolved yet. I can't imagine what is taking so long.
While I was there I checked in on my physical therapy forms. They were not ready yet but I was assured they would be walked down personally by the front desk person.
That was pretty much my day.
Until tomorrow...
Friday, December 6, 2019
NEW GENETIC TEST
I went today to take the test. No one told what the test entails except that I would have to spit. The nurse gave me this giant tube that needed to fill up to a line with spit.
Now it was 8:30 am. I really had not had much to drink yet since I had to rush out to get to the appointment. I also have Sjogren’s and that gives me dry eye and dry mouth. My mouth was so dry there was no way I could fill the tube. The more I sat there stressing the drier my mouth got. I finally got up and left. I asked for my co-pay back and left. I need to reschedule and plan for this appointment. It can not be first thing in the morning when I haven’t had much to drink yet and my mouth is dry. Probably the middle of the day is the best. After I have been hydrating for hours.
Until tomorrow...
Tuesday, November 19, 2019
EATING SOLID BUT BLAND FOOD
The only thing that is not getting better and I have emailed my doctor, is my throat. I think the curry burned my throat very bad. Everything hurts my throat when I swallow. I tried to eat rice and it felt like glass going down. I am going to try broth tonight.
I went to my ob/gyn today. It was my first time with this doctor since my doctor moved to a rural area to work with low-income and undocumented people who need health care. My new doctor was super nice and we got along great. I convinced her to keep me on the medicine I have been on despite my age. I do not want to change medicine. I said what difference is one year? She said she would not take me off the medicine I liked. She is sending me for a newer BRCA panel. I got a BRCA test many years ago when it came out. I was targeted for the test since my mom had breast cancer twice. Now that more people in my family have had it, she wants me to have this panel. I have to schedule it soon.
Until tomorrow...
Monday, May 6, 2019
WHERE IS THE HUMANITY
I could not have gotten out of the car fast enough to help her plus I was in a turn lane and the light was about the turn green, otherwise I would have gotten out to help her.
What has happened to humanity? That a woman falls on the ground and a person (not to mention a man) doesn't go over to see if she is okay and at the very least help her up and help her pick up her bags. I guess I am very lucky that when I fell I had four people come running and help me up and assist me. I even had people walk me to the seats in the pharmacy to sit down and get ice. Then get me home and check in on me. I feel charmed.
I hope she is okay. She walked off so I assume she is okay.
I had my yearly breast check with the breast doctor. No lumps found. Good news!
Until tomorrow...
Tuesday, November 27, 2018
PHOTO CHALLENGE DAY 27
Happi is feeling much better today. Like her old self! The antibiotic shot the doctor gave her is working. The doctor called and said it will only last about 5-7 days so she may need another shot on Sunday or Monday. It can't wait until her surgery on Thursday.
I had my mammogram today. Always such a pleasure. Someone needs to find a better way to get this accomplished. The tech was joking that you always here about who invented the Slinky or the Monopoly game but no one has come forward to say they invented the mammogram machine. I don't think they would be so popular. Yes it finds breast cancer but, gosh, it is not the most pleasant experience!
Until tomorrow...
Thursday, November 8, 2018
PHOTO CHALLENGE DAY 8
It made me think of Thanksgiving.
I went to see my Breast Cancer doctor today. I had an ultra sound of my breast and everything looks good. I have to get my yearly mammogram in a few weeks. There was a discussion about taking Tamoxifen in one year. I need to do some research and see if I want to do that. There have been studies that show that in cases like mine where multiple family members have had breast cancer, taking Tamoxifen can reduce the rate of breast cancer by 96%. I would have to stop taking hormones so that is something to research.
Until tomorrow...





