A blog about my life with rheumatoid arthritis and all that goes along with it. The ups and downs. The highs and lows. The laughter and the tears. Sounds so dramatic, doesn't it?!
Monday, October 31, 2022
HAPPY HALLOWEEN 2022
Sunday, October 30, 2022
TUSCAN KALE SOUP
I made some great soup today.Tuscan Kale Soup. I used Chard instead of kale. I swapped around some other items because I have to make a soup I like. It is really good.
I am starting to get an eye problem. I get these eye problems because I do not make tears and have dry eye. I went to get my solution and it expired two years ago. I have to get more ordered tomorrow. I tried to get something’s done today:read my book, invoice clients. I did a little of each.
I’m just super fatigued. I got into bed at 8 pm.
Until tomorrow…
Saturday, October 29, 2022
DAY TWO HUNDRED THIRTY-TWO OF VEGAN COOKING COURSE
I am back working on my vegan cooking course. If you are paying attention, there are a bunch of numbers missing on my title count. During my Staycation, I did not write the count of what day I was on for the cooking course when I made all those cheeses.
Today I started the Vegan Raw Desserts chapter. It is set up differently than the other chapters. The other chapters give you an overview and then a break down of different recipes with corresponding videos showing you how to make them. Some are even dishes or meals with all the steps laid out.
This chapter has a few recipes but they are only on the video. There is no corresponding written recipe with the video. There is a handout that has some recipes but also different ideas. Example: mini cake can be made with pecans or hazelnuts. It can be topped with caramel, fruit jam, or glazed. It can be filled with jam, caramel, compote. You get the picture? They give me many options rather than one recipe to follow.
I wanted to start out slow so I made Dark Chocolate Mini Cakes with Caramel Drizzle. It would have been really good had I had vanilla ice cream. It tastes like an amazing brownie with decadent caramel on top. It was fun to make and now I have more confidence to make another dessert.
Friday, October 28, 2022
FLU SHOT BUT NO PNEUMONIA SHOT
Today was my scheduled flu and pneumonia shots. I arrived early for my shots when it was explained to me that they had no record of me having a pneumonia shot previously. The pneumonia shots build on each other. First you get a lower numbered one then you get a higher numbered one. I swear I got a pneumonia shot years ago but my doctors office has no record of it. I had to wait around while offices were called and discussions were held. In the end I was told I should wait and only get the flu shot. I got my flu shot and went home.
I took Lucky for a walk and ordered Chinese food for dinner.
I think a flare is coming on. We shall see.
Until tomorrow…
Thursday, October 27, 2022
TWO T-SHIRTS
Wednesday, October 26, 2022
INSPECTION
Tuesday, October 25, 2022
NOT CHANGING MY MEDICINE
I went to see my new Rheumatoid Arthritis doctor. I really liked her when I met her virtually. We got on great. Today when I saw her in person I got another vibe from her. Maybe she was having a bad day? I don't know. I am going to see her again in December and I am going to see if she is the same way.
My labs came through and everything was in the good range. That is fairly typical for me. Especially during COVID since I am alone most days and masked all the time.
I am still processing the appointment because she told me things I was unhappy hearing. She had a completely different plan about my meds than we spoke about on the video call. Instead of adding a medicine she wants to completely change my meds. We all know what that means: potential flares, insurance problems, etc. I am not willing to go through that. The holidays are coming up. Things are not great now but they aren't "horrible bedridden flare" bad. I told her no. She wanted to put me on Gabapentin and take me off Orencia. I said no. Maybe Orencia is not working well but I am not a fan of gabapentin. I give it to my dogs and they have horrible side effects.
She also wants to change my diagnosis after 20 years. I was like "what???" I was so upset about that. It is like telling someone they are a Texan for 20 years and then all of a sudden they are told no we lied, you are actually not from Texas, you are from Philadelphia. Or telling a vegan that you have been feeding them dairy products for years. How do you change something that you have told someone for years and they have been taking meds for and living? It was an upsetting day. I am choosing to ignore her until she gets to know me better. How do you make a decision like that after knowing me for 30 minutes over video conference? Four other doctors can't be wrong.
That was my day and I had a hard time concentrating on anything else. Then an earthquake hit on the West Coast. That was all anyone could talk about.
Until tomorrow...
Monday, October 24, 2022
PEOPLE!
Sunday, October 23, 2022
DAY TWO OF CLEAN UP
Saturday, October 22, 2022
DAY ONE OF CLEAN UP
I got up early and spent two hours cleaning , dusting, sweeping, organizing, and putting things away. I started in the kitchen by organizing it. Then I cleaned it, swept it and dusted it. Tomorrow I am going to mop the floor. Then I moved to the bathroom where I cleaned and swept it. Then I dusted and swept my office. Then my two hours was over and I sat down exhausted.
I read my bookclub book for a while and then had a few phone calls. I took Lucky for two walks.
I wanted to watch a new show but I fell asleep at 9 pm. I was so tired.
Until tomorrow...


